Primary Immunodeficiency Association www.pia.org.uk
Immune Deficiency Foundation www.primaryimmune.org
International Patient Organisation for Primary Immunodeficiencies www.ipopi.org
Hereditary Angioedema Association www.hereditaryangioedema.com
Behcet’s Disease www.behcets.org.uk
Clinician education site www.hae-awareness.net
HAE international - patient group www.haei.org